There are between 4,000 and 6,000 diagnosed genetic disorders. It is estimated that one in 25 children are affected by a genetic disorder – with 30,000 babies and children being newly diagnosed in the UK each year.

Jeans for genes day is an annual fundraising event where people are asked to wear their jeans for the day, and in return to make a donation. To register for this event, or for further information on how your money helps, please click here.